PatientsLikeMe

Showing up for the Friedreich’s Ataxia community.

This week, the PatientsLikeMe team joined patients, families, care partners, researchers, and advocates at the FARA symposium in Philadelphia and National Ataxia Foundation Walk N' Roll in Massachusetts.

These gatherings bring people together to share experiences, build connections, and move progress forward. They’re also a reminder that people living with FA, and those supporting them, must remain at the center of the conversation.

Thank you to FARA and everyone who welcomed us. We’re grateful to listen, learn, and stand alongside this community.

You don’t have to wait for something to be wrong to start paying attention to your metabolic health. ❤️ shares why midlife is a great time to check in on your numbers and see what you can do to support your health moving forward.

Want to learn more about how to be proactive and where to start? 🔗 Read the full Q&A: https://www.patientslikeme.com/blog/heart-health-midlife

When memory changes become something more, it can be hard to know what’s normal and what isn’t.​ Maybe it’s confusion, mood shifts, forgotten conversations, or moments that feel unfamiliar.

Many people find themselves quietly asking: What’s going on?​

​We’re sharing information about clinical trials that may be relevant for people experiencing Alzheimer’s disease and related changes in mood or behavior.​

​See if one may be a fit: https://www.bmsclinicaltrials.com/us/en/alzheimers-disease?cid=s_3605317
Learning more is only a first step, and participation is always voluntary.​
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Let’s get moving together! From October 5–12, join Kara () for a week of getting outside, moving your body, and making time for yourself. Whether it’s a 10-minute walk around the block or a longer stroll, it all counts. 🩷

Join us on WomenLikeMe, log your daily walks, and let’s connect with other women going through menopause.

You don’t have to do it perfectly, just show up. Come move with us! bit.ly/4AW786n

Clinical trials play an important role in advancing Alzheimer’s disease
research for individuals and families affected by the disease.​

We’re sharing research study options for Alzheimer’s disease, where
eligible participants may have the chance to learn more from a study team.​

Learn more: https://www.bmsclinicaltrials.com/us/en/alzheimers-disease?cid=s_3605317

What does postpartum really look like? And how can you feel a little more prepared for those first days at home? 🤍

Join postpartum doula Kathryn Davis on Wednesday, September 30 at 9 AM PT / 12 PM ET for an honest conversation about those early days after bringing baby home.

We’ll talk about:
✨ What those first 24 hours at home can look like
✨ Physical and hormonal changes during recovery
✨ Practical ways to prepare for postpartum
✨ Things you may not expect in those early days
✨ And plenty of time for your questions!

📅 Wednesday, September 30
⏰ 9 AM PT / 12 PM ET
👋 Join us live and bring your questions! Event is free but you must register ahead of time: https://zoom.us/meeting/register/Ya4GQ6bgQJiczlOGBn7mXg