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Support Laine by ensuring that he makes it to his intensive therapies 3 days a week! If you’d like to help pur sweet boy you can donate to $Justicej0 on cashapp
Unfortunately, we live two hours from the facility so gas prices are going to take a toll.
07/04/2026
A perfect start to our 4th of July morning. Stopped into Benton St. Tap for mimosas and breakfast pizza, then we hit the parade!
This parade restored some hope that I thought I had lost in the younger generations. Memorial Day was a bust. Not enough candy was being thrown and Laine walked out of that parade with 1 piece of candy that his Grammy ended up getting for him after we left.
This Bago parade was the complete opposite! We had children from ALL ages racing to grab all the candy, just to turn around and give most if not all of it to Laine. THAT IS A VILLAGE. No parent or adult instructed them to do that. They were simply just raised with manners and basic respect.
What a heartwarming experience. Maybe parades are for him after all. He had an absolute BLAST smiling at everyone in the parade and getting so many smiles in return. I love this little town.
HAPPY 4th FRIENDS AND FAMILY!
“Hospital won’t discharge without care in place” the hell they won’t… they tried to keep my stable child in the hospital for longer because they had dropped the ball on finding us a trach and vent trained nurse.
So I told them I would be signing my child out AMA. They switched their tune and let us go the next day, no AMA contract. 😅
Obviously, this is not something everyone can do. Lots of people work or are single parents. Josh and I made a great team for those first 8 months post-trach without nursing, but we were experiencing some serious burn out. This is NOT advice. Don’t be us.
06/26/2026
🤠 🧑🚀
06/11/2026
Our first week with our first RN since having the trach was an absolute success! Last night was only her third shift and I don’t think me or Josh had to get up with them one time. I peak in on the monitor in the middle of the night and she’ll comfort him to get him back to sleep if he’s awake… she’s very soft spoken and gentle.
This nurse also has ICU experience. She handled a pretty significant o2 desaturation yesterday with ease. And she’s filling all of her hours with us!! That part is important to us for a few different reasons. Laine is a lot to learn and it’s easier to learn him if you’re not trying to keep up with other high needs patients.
If everything keeps going well, I think Josh and I could have our date nights back by next month or so!
the summer spot… catch us by the bluey pool 😎
05/26/2026
05/25/2026
Happy Memorial Day!! 🇺🇸
We attempted the parade. I wish they had a special section for kids in wheelchairs so that they could have a shot at getting some candy. It’s okay though because my boy got a SpongeBobsickle!! Hell yeah brother!!! 🇺🇸🤘🧽
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