Harley Maxwell

Poor baby 🥰

⚠️ 🚺 Women who have PCOS, now called PMOS, and even those who don't have it- Watch this video to have an idea of what PCOS is. PCOS is so much more, but this video does well explaining the main symptoms.

Then: PCOS (Polycystic Ovarian Syndrome)
Now: PMOS (Polyendocrine Metabolic Ovarian Syndrome)

REASON "PCOS" HAS BEEN RENAMED "PMOS":

- Misleading "Cysts" 🚫:
Not all women with this condition have cysts, therefore the name is misleading

- Narrow focus 🔍:
The old name mislead others to think of it as a reproductive or gynecological issue only

- Systemic Impact 🚺:
PMOS affects the full body, not just the ovaries

- Better Care medical 🩺:
Now that the name has changed to highlight the multiple systems involved within the whole body, it will open up more opportunities for testing for the syndrome, allowing doctors from multiple specialties to test and diagnose it (Gynecologists, Endocrinologists, Cardiologists, and Metabolic specialists). This means much easier and faster diagnosis and treatment for patients as well as a better understanding of what PMOS is and how it effects the body- reducing the stigma. You no longer need a "cyst" on your imaging to be diagnosed.

- Funding/Research 🧪:
The new name opens up new doors for more funding, testing, studies and research on the condition which we have all been hoping for 🙏

- Insurance Changes 💰:
Lastly and one of the most important as well is the effects this will have on the insurance world. The new name and class will (soon, but not yet), allow for coverage of insulin/Metabolic drugs like Metformin and GLP1's for treatment as it is no longer considered a "gynecological" diagnosis. Once the new medical codes are produced, insurances will start rolling them in. This takes time and will not be done all at once- gradually over the course of 3 years.

I am so relieved to hear this news! Share this with anyone you know that has PCOS- Now PMOS to fill them in on the good news! ❤️

Keep rollin' rollin' rollin' 🎵 🎶
Big shout out to OAS Mobility for providing the perfect electric wheelchair for me just in time for my trip to LA for my FND treatment! 🙏

OAS Air Ultra Features:
- Only 36lbs
- Dual batteries (15m range)
- Foldable
- Airline friendly
- Ergonomic seat and pedals
- All terrain wheels
- 5.6mph
- and more!

Brand Perks:
- Great customer service
- Offer a "7 day Peace of Mind" Policy: If you do not like it or something is wrong, you can return the chair within 7 days of delivery for NO CHARGE to you!

Check out their website @ OASmobility.com/HARLEY
And if interested, use code " HARLEY " at checkout for a discount!

When your fur baby thinks she's the boss around here 🤣

This chair goes everywhere with me! OAS Mobility

Go to OASMobility.com/HARLEY and use code: "HARLEY" at checkout for a $35 OFF discount.

Thankfully I was able to call my husband just before I passed out and fell. He caught me right as I was falling 😳

This is something I deal with daily, just not always to this extreme. Dizziness, fainting, presyncope, lightheadedness, blood pressure drops, tremmors, fatigue, blood pooling, tachycardia, tics and seizures.

FND and POTS have stolen the life out of me. If you knew me before, I was a completely different person inside and out.

I am hoping to raise enough money for treatment. Im supposed to leave in a couple of weeks, but I havent raised enough money yet. We are $4,000 below target for treatment expenses. I can't book the hotel and flight until we know for sure I can go. The cost is rising as time gets closer as well, so we need to raise the funds as soon as possible.

I have a huge following on here- both IG and TikTok, and I hope with the help of my followers and community, that we can raise the amount needed for treatment. I will never be able to dance again, skate again, ride motorcycles again, shop again, work again or ever be independent again in general without this treatment.

I ask all of my friends and family to please donate if you can and most importantly- share! Share my story to others, how you know me, etc. Because $4k is a lot for one person, but to many its small. Donating a small portion, but in big numbers is the only way we can reach the goal!

Thank you to everyone who has already donated and shared! We wouldn't even be here without you, and I have faith we can do this! 🙏 ✝️

GoFundMe link is in the comments, as well as attached to the link in my Bio.

Paypal: Hmaxwell306
Venmo: Maxwell_harley